Thursday, July 14, 2005

Calendar, calendar on the wall

Calendar, calendar on the wall..Tell me what I must do today... 

What would we do without a calendar. Personally I would be lost. My life seems to evolve around Dr. appointments and physio and keeping track of meds.
Every day on my calendar for this month has something written on it except the lst and the 15th.

How these two days got so lucky to be blank...I'm not quite sure, but I bet its just human

Thursday, July 07, 2005

Blood tests

Had to get up this morning and try to shower, ouch...ugh....oh lord it hurts to move. I drove myself into the hospital for blood work today. It was difficult to do, more so than I thought it would be. Reaction time is slower than normal, but I have to get some independance back.

The Admitting Dept told me that I am set up to come in on Mondays and Wednesdays for tests and that I will have extra blood and a urine test done once a month. It seems that the methotrexate will damage my liver,,, go figure... something else to worry about!

Blood is up to 3.5 so Dr. called and she is reducing my warfarin to 8mg day. She said its comon to fluxuate for the first few months.

Wednesday, July 06, 2005

Home again

July 6/05

It felt so good to come home. I'm uneasy that they didn't re-scan my lung to make sure that the clot is gone, in some ways I still feel like a walking time bomb. Maybe that feeling will go away. I have to go back to the hospital tomorrow for blood test and then twice a week until it becomes somewhat regular. The reading is suppose to be between 2 and 3 right now its 2.1 and I am on 10mg of warfarin a day.

Very good to see the dogs and cats, I think everyone's tail was wagging... I know mine was. LOL

N said that JJ was having a hard time going to bed, I think its because his schedule has been all messed up with me in the hospital and him and N coming in for visits.

I still feel exhausted, that seems to almost be a permanent symptom since January. I'm tired of feeling tired, I so want to be that energetic person again.

Tuesday, July 05, 2005


July 5/05

I'm so happy, today the doctor let me come home. I quickly packed my bags and with perscription in hand N wheels me down to the hospital front door. JJ wants to try out the wheel chair so I let him climb up on my lap. I lean in and smell his hair and give the back of his neck a kiss. Its amazing what you miss about a child when you don't have them in your company for a week. He keeps me grounded, if it wasn't for the fact that I have to be there for him, I think I might of gave up when the pain was really bad. Can a child give you hope and make you want to live.... Yes !