Calendar, calendar on the wall..Tell me what I must do today...
What would we do without a calendar. Personally I would be lost. My life seems to evolve around Dr. appointments and physio and keeping track of meds.
Every day on my calendar for this month has something written on it except the lst and the 15th.
How these two days got so lucky to be blank...I'm not quite sure, but I bet its just human error...lol
Thursday, July 14, 2005
Thursday, July 07, 2005
Blood tests
Had to get up this morning and try to shower, ouch...ugh....oh lord it hurts to move. I drove myself into the hospital for blood work today. It was difficult to do, more so than I thought it would be. Reaction time is slower than normal, but I have to get some independance back.
The Admitting Dept told me that I am set up to come in on Mondays and Wednesdays for tests and that I will have extra blood and a urine test done once a month. It seems that the methotrexate will damage my liver,,, go figure... something else to worry about!
Blood is up to 3.5 so Dr. called and she is reducing my warfarin to 8mg day. She said its comon to fluxuate for the first few months.
The Admitting Dept told me that I am set up to come in on Mondays and Wednesdays for tests and that I will have extra blood and a urine test done once a month. It seems that the methotrexate will damage my liver,,, go figure... something else to worry about!
Blood is up to 3.5 so Dr. called and she is reducing my warfarin to 8mg day. She said its comon to fluxuate for the first few months.
Wednesday, July 06, 2005
Home again
July 6/05
It felt so good to come home. I'm uneasy that they didn't re-scan my lung to make sure that the clot is gone, in some ways I still feel like a walking time bomb. Maybe that feeling will go away. I have to go back to the hospital tomorrow for blood test and then twice a week until it becomes somewhat regular. The reading is suppose to be between 2 and 3 right now its 2.1 and I am on 10mg of warfarin a day.
Very good to see the dogs and cats, I think everyone's tail was wagging... I know mine was. LOL
N said that JJ was having a hard time going to bed, I think its because his schedule has been all messed up with me in the hospital and him and N coming in for visits.
I still feel exhausted, that seems to almost be a permanent symptom since January. I'm tired of feeling tired, I so want to be that energetic person again.
It felt so good to come home. I'm uneasy that they didn't re-scan my lung to make sure that the clot is gone, in some ways I still feel like a walking time bomb. Maybe that feeling will go away. I have to go back to the hospital tomorrow for blood test and then twice a week until it becomes somewhat regular. The reading is suppose to be between 2 and 3 right now its 2.1 and I am on 10mg of warfarin a day.
Very good to see the dogs and cats, I think everyone's tail was wagging... I know mine was. LOL
N said that JJ was having a hard time going to bed, I think its because his schedule has been all messed up with me in the hospital and him and N coming in for visits.
I still feel exhausted, that seems to almost be a permanent symptom since January. I'm tired of feeling tired, I so want to be that energetic person again.
Tuesday, July 05, 2005
Sprung
July 5/05
I'm so happy, today the doctor let me come home. I quickly packed my bags and with perscription in hand N wheels me down to the hospital front door. JJ wants to try out the wheel chair so I let him climb up on my lap. I lean in and smell his hair and give the back of his neck a kiss. Its amazing what you miss about a child when you don't have them in your company for a week. He keeps me grounded, if it wasn't for the fact that I have to be there for him, I think I might of gave up when the pain was really bad. Can a child give you hope and make you want to live.... Yes !
I'm so happy, today the doctor let me come home. I quickly packed my bags and with perscription in hand N wheels me down to the hospital front door. JJ wants to try out the wheel chair so I let him climb up on my lap. I lean in and smell his hair and give the back of his neck a kiss. Its amazing what you miss about a child when you don't have them in your company for a week. He keeps me grounded, if it wasn't for the fact that I have to be there for him, I think I might of gave up when the pain was really bad. Can a child give you hope and make you want to live.... Yes !
Wednesday, June 29, 2005
Take my breath away
June28/05
I am getting so tired of this pain in my lungs. I have now been on two different anibiotics for pneumonia and its not getting any better. Personally I don't think its pneumonia, I've have it before and I don't remember ever feeling like this! I would love to just be able to lie down for a whole night. hmmmm, I think I remember what a full nights sleep is like....no maybe not. LOL
Went into family Dr. today, she sent me right over to the hospital for more tests. I think I will glow in the dark if they take anymore xrays of me...LOL First it was a ultra sound on my leg, since I have had some unexplained throbbing pain. Then it was for blood work, then I limped over to the other side of the hospital for a CT scan with dye. I limped back over to the other side of the hospital again by the ER department to wait for the results.
A nurse comes out of the admitting room doorway with a wheel chair and told me to sit down. I looked at her puzzled,,, "why sit down" I asked her... I mean I just spent the last 3hours walking from one end of this hospital to the other.... "Please, just sit down and I will explain it to you" she replied.
I sat, she wheeled me into a cubicle... layed my chart on the bed and said "the Dr. will be right in". She turns and leaves...I'm nervous now!
JJ has been a jem despite the fact that we have been in the "boring hospital" all day. He crawls up on the bed, I sit tapping my fingers on the arms of the wheel chair.
The Dr. comes in and picks up my chart. "We are going to admit you", he announces... "Right now" I ask? "Yes", he replies... "right now".
It seems that my 3 months with lung pain hasn't been pneumonia at all but a blood clot in my lung. Thats right, a blood clot. I could of dropped dead and they wouldn't have known why! My mind is going a mile a minute. Inside, I'm upset, I'm mad! But I keep it together, I have plans to make.
I mean I have a 4yr old with me, N is at work... I pick up the phone and call my yougest daughter. She is just getting off work. She comes over and pickes up JJ and takes him with her for a while till N gets off work. I then call N at work and explain to him what is going on. He agrees to pick up JJ from B, go home and pack me a bag and come back into town and see me at the hospital.
I get settled into a room, semi private and the TV is already hooked up... bonus. The next two days are anything but pleasant. Liquid blood thinners are shot into my stomach every few hours and blood tests every day to see how well it is being thinned out. By day 4 they switch me to just pills Warfarin, aka..rat poison,,blood thinner.... I will be on them for the rest of my life. I have yet another product of Lupus, its called "Hughes syndrome" or sticky blood. http://www.netdoctor.co.uk/diseases/facts/antiphospholipid.htm My doctor explained it like your blood is thick and resembles cottage cheese with caramel sauce on it, it just doesn't flow like its supose to.
My brother comes in and we get talking about this whole blood thing. He tells me that he had some strange antibody show up in his blood work a few years back. It was called "anticardiolipin" antibodies, and he tells me to ask my Dr if that is what I have. I write it down and sit it on my nite stand. In the morning during "rounds" I inquire about the antibody and she promiced to check on it.
I try to get comfortable and push the "up" button to raise my head up some more in the hopes of releiving the pressure on my lung when I breath. It seems like its no use, the constant throbbing when I take a breath is always there. I turn on the tiny TV and try to focus on something else, maybe some mindless game show will take my mind off my pain. I don't do hospitals well. Probably the "control" issue thing, when your in the hospital you don't have much control over anything that goes on. I just want to go home, I need a magic wand and get better faster than what is happening. I miss cuddling with N, I miss J telling me he loves me twenty times a day, I miss my animals... Please let me go home....
I am getting so tired of this pain in my lungs. I have now been on two different anibiotics for pneumonia and its not getting any better. Personally I don't think its pneumonia, I've have it before and I don't remember ever feeling like this! I would love to just be able to lie down for a whole night. hmmmm, I think I remember what a full nights sleep is like....no maybe not. LOL
Went into family Dr. today, she sent me right over to the hospital for more tests. I think I will glow in the dark if they take anymore xrays of me...LOL First it was a ultra sound on my leg, since I have had some unexplained throbbing pain. Then it was for blood work, then I limped over to the other side of the hospital for a CT scan with dye. I limped back over to the other side of the hospital again by the ER department to wait for the results.
A nurse comes out of the admitting room doorway with a wheel chair and told me to sit down. I looked at her puzzled,,, "why sit down" I asked her... I mean I just spent the last 3hours walking from one end of this hospital to the other.... "Please, just sit down and I will explain it to you" she replied.
I sat, she wheeled me into a cubicle... layed my chart on the bed and said "the Dr. will be right in". She turns and leaves...I'm nervous now!
JJ has been a jem despite the fact that we have been in the "boring hospital" all day. He crawls up on the bed, I sit tapping my fingers on the arms of the wheel chair.
The Dr. comes in and picks up my chart. "We are going to admit you", he announces... "Right now" I ask? "Yes", he replies... "right now".
It seems that my 3 months with lung pain hasn't been pneumonia at all but a blood clot in my lung. Thats right, a blood clot. I could of dropped dead and they wouldn't have known why! My mind is going a mile a minute. Inside, I'm upset, I'm mad! But I keep it together, I have plans to make.
I mean I have a 4yr old with me, N is at work... I pick up the phone and call my yougest daughter. She is just getting off work. She comes over and pickes up JJ and takes him with her for a while till N gets off work. I then call N at work and explain to him what is going on. He agrees to pick up JJ from B, go home and pack me a bag and come back into town and see me at the hospital.
I get settled into a room, semi private and the TV is already hooked up... bonus. The next two days are anything but pleasant. Liquid blood thinners are shot into my stomach every few hours and blood tests every day to see how well it is being thinned out. By day 4 they switch me to just pills Warfarin, aka..rat poison,,blood thinner.... I will be on them for the rest of my life. I have yet another product of Lupus, its called "Hughes syndrome" or sticky blood. http://www.netdoctor.co.uk/diseases/facts/antiphospholipid.htm My doctor explained it like your blood is thick and resembles cottage cheese with caramel sauce on it, it just doesn't flow like its supose to.
My brother comes in and we get talking about this whole blood thing. He tells me that he had some strange antibody show up in his blood work a few years back. It was called "anticardiolipin" antibodies, and he tells me to ask my Dr if that is what I have. I write it down and sit it on my nite stand. In the morning during "rounds" I inquire about the antibody and she promiced to check on it.
I try to get comfortable and push the "up" button to raise my head up some more in the hopes of releiving the pressure on my lung when I breath. It seems like its no use, the constant throbbing when I take a breath is always there. I turn on the tiny TV and try to focus on something else, maybe some mindless game show will take my mind off my pain. I don't do hospitals well. Probably the "control" issue thing, when your in the hospital you don't have much control over anything that goes on. I just want to go home, I need a magic wand and get better faster than what is happening. I miss cuddling with N, I miss J telling me he loves me twenty times a day, I miss my animals... Please let me go home....
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